Tag Archives: Sense

Advocacy and Enlightenment on Lung Cancer

Shine a Light on Lung Cancer — Event Recap

I just returned from seeing the folks in my lung cancer support group, where we were treated to a recap of the Shine a Light event from this past weekend. I got to see my speech all the way through for the first time, projected on a big screen in the conference room where we meet, and I’ll admit that I made myself tear up a bit there. It’s like I was speaking directly to me. And it made me realize how much I could have benefited from an actual stylist, but I suppose that is another story.

Shine a Light on Lung Cancer at Huntington Memorial Hospital
Let’s play “Who’s Doing Chemo?” among these three gentlemen… Here’s a hint, left to right we have: Robbin Cohen, MD, medical director for the thoracic oncology program, Jorge Nieva, MD (my esteemed oncologist), myself (the lung cancer patient)  and Christine Conti, RN, nurse navigator for the Huntington Hospital lung cancer program, who brought my medical team together. If you guessed “the guy with the hair,” you’d be winning big prizes right now. If there were prizes. Sorry, no prizes. But thank you for playing.

There were 147 people in attendance for this lovely event; next year I am hoping that we can inspire something new, like a walk organized through Downtown Los Angeles with 1,000 or more people participating. High hopes, perhaps, for an often stigmatized illness. But this is about changing perception and bringing the narrative into the 21st Century.

In the meantime, please consider supporting this petition for increasing research funding, and please share it with your friends and social networks. Nothing progresses without sharing — it is the only way to truly increase awareness. There needs to be a greater discussion around lung cancer, and around cancer in general, so that people can begin to understand what this condition truly is and how it can be safely and effectively lived with when treated early enough and with proper medical care.

Too many people are still living with a fear-based paradigm about cancer, rooted in outdated treatments and late detection. Hollywood is still making movies about what cancer was like decades ago and the scientific journals are too dense or obtuse for laypeople to easily digest. TV personalities like Dr. Oz are still offering false hopes and pseudoscientific claptrap for easy ratings by promoting dietary cures and other nonsense rather than speaking truth about the rise of medical science. In fact, Dr. Oz and his guest Dr. William Li play fairly fast and loose with the notion that the foods they recommend can actually prevent or treat cancer. The sheer volume of food that would have to be consumed to even come close to the results they imply would be difficult to tolerate at best. Continue reading Advocacy and Enlightenment on Lung Cancer

Worried That Your Sandwich Will Cause Cancer?

The World Health Organization recently released an important report about the cancer risks associated with eating processed meat in general and red meat in particular. The report itself, as I have commented, is quite valid and important when we discuss how overall health and dietary habits impact both the healthy population and cancer patients, alike. But does this mean our lunch is going to give us cancer? If we eat a meat sandwich to get us through the day, are we causing irreparable harm? As with most nutritional issues, we need to look at this from a less simplistic point of view and a focus on moderation.

To begin with, let us discuss the sandwich model by creating the model sandwich.

Image of a sandwhich layered with vegetables rather than a pile of meat.
One thin slice of processed lunchmeat tops a stack of arugula, avocado, tomato and hidden chili peppers. And one extra thin slice of cheese, folded to fit.

We get some insight from the WHO report about the populations that are most adversely affected by processed and red meat consumption. It has long been know that eating habits hold a lot of sway when it comes to healthy issues, cancer among them. And one of the most important places we see increases in disease is among the obese. There is a strong correlation between obesity and a high consumption of processed foods, including inexpensive meats such as hot dogs, lunch meat, salami, etc. What there is not a frequent correlation to, however, is an equal intake of vegetables and fruit, fresh or otherwise. Fiber plays a strong role in our digestive system, without which we are much more prone to a range of maladies. And fresh fruits and vegetables are nutritionally dense compared to processed foods, offering vitamins and minerals that are necessary for bodies to function properly, maintain good immune support and otherwise keep us in good health.  Continue reading Worried That Your Sandwich Will Cause Cancer?

Lung Cancer Answers and Awareness Support

As a frequent contributor to Quora.com, a website for asking questions and getting answers from people who are knowledgable about the subject, I have naturally offered input on issues related to lung cancer. After all, one of the first rules for authors is to “write what you know.” Here, in honor of lung cancer awareness month, I am collecting links to some of the answers I have supplied on Quora.

  • Read on below the links for more on Lung Cancer Awareness

Some of these questions have many answers and mine might be somewhere down the list, but generally all of them make for interesting reading and good perspectives. Popular ones may have been “upvoted” quite extensively (this could also be the case for older answers while newer answers with more merit may have few upvotes simply because fewer people have viewed them). Also, a lot of the answers are quite brief. Occasionally I do get a bit long-winded, but my contribution to the discussion could be just a few sentences or paragraphs. Overall, however, I think that these questions and answers make for good reading in a format more like a town hall meeting than a typical blog. Continue reading Lung Cancer Answers and Awareness Support

November Is Lung Cancer Awareness Month

I love autumn. My favorite season is marked by the changing colors of leaves, the cooler breezes and the fun of Hallowe’en. October has traditionally been my favorite month, marking the real onset of autumn. October is also Breast Cancer Awareness Month, and the advocates for this have done a tremendous job over the past decades, leading toward huge increases in funding for research and also leaps forward in treatment. The popularity of this movement, however, overshadows Lung Cancer Awareness Month, right on its heels in November. While the movement for Lung Cancer Awareness might not be as popular, the disease itself is equally entrenched and far more deadly. But the greater public has yet to rally for this affliction with anywhere near the fervor of other causes, in spite of an overall very small piece of the research pie.

“The American Cancer Society’s estimates for lung cancer in the United States for 2015 are:

  • About 221,200 new cases of lung cancer (115,610 in men and 105,590 in women)
  • An estimated 158,040 deaths from lung cancer (86,380 in men and 71,660 among women).

Lung cancer accounts for about 27% of all cancer deaths and is by far the leading cause of cancer death among both men and women. Each year, more people die of lung cancer than of colon, breast, and prostate cancers combined.” (From cancer.org)
Continue reading November Is Lung Cancer Awareness Month

The Give and Take of the Support Group

I met some nice people today. People who I would not normally have crossed paths with in my daily life. They were a happy, optimistic bunch, or seemed so to me, in spite of the circumstances that brought us together for the 90 minutes allotted this morning. Most of the small group knew each other, but were largely strangers to me when I walked into the room. It was my first time attending a cancer support group.

I had no idea what to expect from the meeting. The truth is, I had not been in any particular rush to attend; my impression of such a gathering was based on flimsy Hollywood portrayals, and that fuelled more by onscreen AA meetings than anything else. The coordinating nurse who ran the meeting was also the person responsible for setting me up with my oncologist and taking care of most of the administrative functions revolving around my early care from the point where my tumor was identified until I had begun my chemo drips. And she has been a part of the process since, if not directly, keeping tabs on me and checking in now and again. She had asked me on several occasions if I would attend a support group meeting and I had always put it off, thinking that I was doing fine and so, really, it wasn’t something I really needed to do.

Then she sent me a flier, with a personal note at the top, and I went and put the date in my calendar. And then there I was. Continue reading The Give and Take of the Support Group

The Cannabis Cancer Cure Explained

Let’s put the Cannabis Cancer Cure into some perspective.

If we face the facts, anyone purveying hemp oil or cannabis as a cancer cure is either willfully ignorant of the facts or is delusional about its proven effects. While certain cannabinoids or other chemicals found in the cannabis certainly show promise for potential cancer treatments, thus far the only valid studies have occurred in Petri dishes or grafted animal tumors. And there is one insidious fact left out of the claims proliferating across the Inter Webs.

Cannabis can make some cancers worse.

That’s right, the same chemical components that appear to kill or slow the progression of some cancer cells have also been shown to speed the growth of other cancer cells. There is a matter of dosing, too: some doses help reduce tumors while other doses will actually cause progression. And this is still in a highly controlled lab dish setting. Getting those doses correct through the filter of individual human metabolism could be a disaster, if it even works at all. Continue reading The Cannabis Cancer Cure Explained

Perspective: One of the Greatest Gifts of a Cancer Diagnosis

I was skulking around the house last week, ruminating on just how bad I smelled. My wife was getting annoyed with me, insisting that I did not smell any differently; it was a hot, stagnant summer day and I was sweating (I felt) profusely. My chemo treatment was beginning to purge from my system and it seemed to me that as I would walk around a corner or even just turn my head, I would get a wiff of something nasty, putrid, sour. And I couldn’t shake it — that smell was just plain bad.

But it couldn’t be identified, or even located. And I was the only one smelling it.

Then I started to take stock of all my symptoms, which I do now and then as both a way of monitoring my body and keeping a sense of humor about the process. Because it can be pretty gross. Let’s face it, no one likes to think of themselves covered in puss-filled sores, hobbling about on swollen feet and wafting fetid breezes from God knows where throughout the room. Continue reading Perspective: One of the Greatest Gifts of a Cancer Diagnosis

The Chemo Diaries: More Summer Fun

Aside from my ever diminishing veins, the infusions during maintenance continue to be easy and relaxing. I guess I am lucky in that way — I know people who have different cocktails that they have various reactions to, from rash to fever to nausea on one end and flat out groggy sleep on the other. During these Alimta cycles, I am in and out fairly quickly and my biggest complaint is not having enough time here with the heated massage chair and my morning coffee to, uh, get any real work done…

image
finally time for my cup of morning joe

 

Two infusions ago this chemo drug appeared to really mess with my digestive system, but it cleared up just in time for my scheduled CT scan and did not recur with the following round. The assumption now is that I simply caught a stomach bug that lingered for a couple weeks. The whole repressed immunity thing has been on my mind lately, and not just because what probably should have been a 24 hour virus took me 14 times longer to purge from my system.

Although the ensuing three weeks were relatively symptom-free (steroids make me irritable, mess up my sleep for three or four days and make me an emotional raw nerve; the chemotherapy wreaks havoc with my joyous time travel into the land of teenage acne, but even these things seemed to lessen somewhat), the issue of immunity and, more specifically herd immunity, was thrust back front and center when we brought a new kitten home from the pound. Continue reading The Chemo Diaries: More Summer Fun

Let’s Talk Nutrition!

Doing research on Cancer, you cannot help but stumble across about a million web sites (not to mention books, those old things) ready to inform about all the ways that food and supplements can either prevent or cure the myriad of cancers out there. So I thought I would do everyone a solid and break down the Truth About Nutrition and Cancer right here. I’m not a doctor, nor a nutritionist, but I am a human being who eats, takes his vitamins AND has cancer! Kind of makes me an expert, just don’t look at this as medical advice. (The info here is good for people without cancer, too, because everyone wants to be healthy!)

About the time that a patient receives a diagnosis of CanCeR, or any other crazy disease/condition/illness/mutation that sets the mind into panic mode, someone is going to be hot after a diet to improve things or search out a cause in the previous diet for where things went terribly wrong, or otherwise look to Nutrition for answers. And, just as inevitably as Nutrition will be sought out for those answers, the InterWebs will provide volumes about why whatever the patient had been eating was the cause of his or her maladies, or perhaps what the patient had not been eating, but whichever the case is there will most certainly be a solution/cure for whatever ails said patient in the form of an ingestible, potentially (or at least allegedly) natural substance. And, by gum, this is in spite of the fact that Big Pharma and the Medical Industrial Complex have conspired to keep the valuable information a secret (which is why it is available on thousands of non-academic, ready to sell you something web pages).

And this is when I point out something obvious, which many individuals fail entirely to pay attention to while distracted by the conspiracy theories being thrown at them: even when the information is being “given away for free,” the site you are visiting is almost certainly selling something. Continue reading Let’s Talk Nutrition!

Ignoring the Plumbing: Never a Good Plan

Ignoring the plumbing is one of those things that always seems to lead to more problems (and expenses) down the road. Good maintenance is the best practice for a cost-effective and hopefully long life of the system. This is true, not just for our own bodies, but also quite literally when it comes to household plumbing.

wpid-20150108_144118.jpgNot long after I began my chemotherapy, I realized that I had been putting off some of my own maintenance for far too long. In this case, it was a wobbly toilet in the main bathroom, where one of the bolts that used to hold it securely in position against the floor had rusted away and, not long after, the seal on the caulk had come loose. Realization struck that it was only a matter of time until something would go terribly wrong, and I imagined all sorts of disasters I did not want to deal with following an infusion (or pretty much any other time, ever).

I had looked into toilet repair on YouTube. Since that is how I solve most of my plumbing issues, I watched a five-minute video on how to install a wax ring and set a toilet properly. Everything was ready, except that my kit from Home Depot was missing the actual wax ring it was supposed to include with all the other bits of hardware. Fortunately, I noticed that before taking the toilet off the floor. Continue reading Ignoring the Plumbing: Never a Good Plan