I was skulking around the house last week, ruminating on just how bad I smelled. My wife was getting annoyed with me, insisting that I did not smell any differently; it was a hot, stagnant summer day and I was sweating (I felt) profusely. My chemo treatment was beginning to purge from my system and it seemed to me that as I would walk around a corner or even just turn my head, I would get a wiff of something nasty, putrid, sour. And I couldn’t shake it — that smell was just plain bad.
But it couldn’t be identified, or even located. And I was the only one smelling it.
Then I started to take stock of all my symptoms, which I do now and then as both a way of monitoring my body and keeping a sense of humor about the process. Because it can be pretty gross. Let’s face it, no one likes to think of themselves covered in puss-filled sores, hobbling about on swollen feet and wafting fetid breezes from God knows where throughout the room. Continue reading Perspective: One of the Greatest Gifts of a Cancer Diagnosis→
Aside from my ever diminishing veins, the infusions during maintenance continue to be easy and relaxing. I guess I am lucky in that way — I know people who have different cocktails that they have various reactions to, from rash to fever to nausea on one end and flat out groggy sleep on the other. During these Alimta cycles, I am in and out fairly quickly and my biggest complaint is not having enough time here with the heated massage chair and my morning coffee to, uh, get any real work done…
finally time for my cup of morning joe
Two infusions ago this chemo drug appeared to really mess with my digestive system, but it cleared up just in time for my scheduled CT scan and did not recur with the following round. The assumption now is that I simply caught a stomach bug that lingered for a couple weeks. The whole repressed immunity thing has been on my mind lately, and not just because what probably should have been a 24 hour virus took me 14 times longer to purge from my system.
Although the ensuing three weeks were relatively symptom-free (steroids make me irritable, mess up my sleep for three or four days and make me an emotional raw nerve; the chemotherapy wreaks havoc with my joyous time travel into the land of teenage acne, but even these things seemed to lessen somewhat), the issue of immunity and, more specifically herd immunity, was thrust back front and center when we brought a new kitten home from the pound. Continue reading The Chemo Diaries: More Summer Fun→
Please note, this is Part One of a series. Click here to jump to Part Two or follow the link at the end of this post. Part Two contains some very important information that greatly expands upon some of what is raised here.
Somehow I managed to miss the name Candice-Marie Fox when I was going through earlier research on foods that are claimed to cure cancer, of which her pineapple diet ranks as one of the more ludicrous. Through the grapevine, I learned of this diet yesterday and immediately I wanted to find out if there was anything plausible about it. Certainly, pineapple is healthy to eat and it is often used for digestive issues due to its enzymatic activity, so I wanted to give it the benefit of the doubt. Of course, I did not expect that there would be an actual cure in there, but maybe I could ascertain some actual benefits to the diet that transcended my initial skepticism. I was excited about this possibility; less so about discovering one more person preparing to cash in on a faux cure.
Pineapple is good for you.
A quick Google search brought up hundreds of articles online about how this woman, Candice-Marie Fox, a former model (always in the lead of the story), beat “Stage 3” or “Stage 4” (depending on the article) thyroid cancer by “ditching her husband” and eating a diet dominated by pineapple and other fruits. As is often the case in this sort of story, even as it is translated into multiple languages, the text is almost identical from web site to web site. And most of those articles can be traced back to a source in that British rag called the Daily Mail — not exactly a solid, investigative news source.
A few other “news” outlets picked the story up. It makes great click bait, after all. But fascinatingly, these actual news stories manage to get a whole bunch of facts wrong. Which is not surprising, as the former model herself seems to trip over her own facts many times, even in interviews on other web sites after her celebrity began to grow.
Doing research on Cancer, you cannot help but stumble across about a million web sites (not to mention books, those old things) ready to inform about all the ways that food and supplements can either prevent or cure the myriad of cancers out there. So I thought I would do everyone a solid and break down the Truth About Nutrition and Cancer right here. I’m not a doctor, nor a nutritionist, but I am a human being who eats, takes his vitamins AND has cancer! Kind of makes me an expert, just don’t look at this as medical advice. (The info here is good for people without cancer, too, because everyone wants to be healthy!)
About the time that a patient receives a diagnosis of CanCeR, or any other crazy disease/condition/illness/mutation that sets the mind into panic mode, someone is going to be hot after a diet to improve things or search out a cause in the previous diet for where things went terribly wrong, or otherwise look to Nutrition for answers. And, just as inevitably as Nutrition will be sought out for those answers, the InterWebs will provide volumes about why whatever the patient had been eating was the cause of his or her maladies, or perhaps what the patient had not been eating, but whichever the case is there will most certainly be a solution/cure for whatever ails said patient in the form of an ingestible, potentially (or at least allegedly) natural substance. And, by gum, this is in spite of the fact that Big Pharma and the Medical Industrial Complex have conspired to keep the valuable information a secret (which is why it is available on thousands of non-academic, ready to sell you something web pages).
And this is when I point out something obvious, which many individuals fail entirely to pay attention to while distracted by the conspiracy theories being thrown at them: even when the information is being “given away for free,” the site you are visiting is almost certainly selling something. Continue reading Let’s Talk Nutrition!→
I was reading a friend’s blog post a while back, a personal rant she shot off about tolerance (especially among the particular Christian community of which she considers herself a part) in response to Bruce Jenner’s transition to Caitlyn. I had not realized (at that time) that this was a big deal, or even anything particularly new to discuss, but then I have been living in Los Angeles for about 30 years and this sort of thing is long past novel for me. I know that there are plenty of bigots and idiots in Southern California, but I’ve been fortunate enough to surround myself with, if not always like-minded, at least open-minded individuals for most of my time here. I am also fairly confident that even my oldest friends from rural Illinois who remain entrenched in “Middle America” are soundly rooted in kindness and tolerance. In my well-lived-in fantasy world, it often seems that most narrow-minded people exist strictly as online trolls, waiting to lob their tirades at rational science or reasonably centrist political viewpoints. Then, every now and again, I wake up and venture outside.
For a long time, I’ve been repeating my belief that much of what is wrong with our particular society is rooted in a lack of Critical Thinking Skills. And I believe that tolerance, in general, is indicative of that same problem. If we, as a culture, were to exercise better critical thinking, then bigotry of all types should readily dissipate. After all, bigotry stems from a certain dogmatic thought process which is destroyed by self-examination and a broader understanding of how things actually work and fit together. Therefore, any thoughtful group of people ought to find that their differences make them stronger and unite them better, unless those differences are Continue reading Vanity→
In this age of social media, some people might question why I kept quiet about my cancer treatment for as long as I did. There were some very simple reasons for me — in spite of the fact that I was writing a blog about it the whole time. (If you are learning about my experience for the first time, that link is a good place to start reading after you are done here.) Essentially, however, I wanted to keep my personal life separate from what I felt might otherwise define me in the eyes of others. This was a short-term issue, I realized, because at some point the nature of living with an inoperable cancer is that it does define much of a patient’s life, regardless of how much one might prefer otherwise. So I decided to try the slow roll out of information and, to be quite honest, it has served me well (and I also think it has been good for many of the people in my life, too).
When I received my initial diagnosis, there were certain people, mainly family members, who already knew that I had some health issues that were being investigated. In addition to my immediate family, there were also my employers and maybe one or two other people who had to be in the loop, and I knew I would tell these people right away when I had all the information.
As part of my research, before I had any solid diagnosis, I had already gone through pretty much every possible scenario in my head and followed up online to gather information on what any potential diagnosis would mean. Along the way, I also discovered that Continue reading Why I Kept My Cancer Private→
If we, as a society, could allocate just an additional $120 million each year toward research and development of new cancer treatments, that would seem like a great idea. Because there is a lot of money out there already directed at existing therapies, running clinical trials of proven concepts and supporting the refinement of effective treatments already in existence, it also seems like a great idea to take this $120 million and direct it toward new concepts and approaches that are not yet mainstreamed into Western Medicine. This is the reason, I suspect, that over the past twenty years or so, Complementary and Alternative Medicine (CAM) has morphed into Integrative Medicine and has been granted enormous research subsidies and acceptance within many mainstream health institutions. Allocating even a mere $120 million is a huge responsibility, so it also seems like it would be a great idea to carefully vet the areas on which the funding will be spent.
Here is some amazing news: the actual amount of government funding for research on Complementary and Alternative Medicine in 2015 and 2016 has reached $369 and $378 million annually, according to the National Institute of Health. This should be a Golden Age of Medical Advancement! Sizable annual funding being made available outside of the mainstream of modern medicine must be the answer to why there has been no definitive Cancer Cure.
A person I know quite well — and with whom I recently have had several lengthy conversations about my current state of affairs — offered an interesting appraisal of her understanding of my health and well-being to my wife. She said, rather unceremoniously, that she had expected me to be dying. In fact, she seemed quite surprised (and possibly a bit put off) by how healthy I appeared. Turns out, I have news for her:
In fact, here I am, looking quite well (and dare I say “dashing”) in my new progressive lenses picked up today to aid my aging eyes. True, after over 15 years of having a stable prescription, the chemotherapy seems to have begun affecting my vision ever so slightly, at least in the first couple of feet. So this minor side effect has required me to jump straight into trifocal territory. Aside from the minor “swimmy” effect of turning my head side to side while looking through the “mid-range” section, these are actually quite amazing. But that isn’t really what this entry is about, so I’m going to move along.
The thing that most startled me, and which I actually took some offense at, was the notion that a person who is not stupid managed to ignore virtually everything that she had been told about my condition, the state of cancer research and, perhaps most importantly, why statistics do not tell a whole story, or often even a remotely correct one. And what did this person rely upon to make up her mind about what I was going through and my prognosis for continuing life?
On the heels of a recent discussion on changing the Narrative of Cancer as a means to enable better communication and understanding with regard to the hundreds of cancer variants, I came across a very interesting article on a closely related topic: changing the Narrative of Dying. Far from being a depressing or downbeat approach, the article discusses the need for reevaluating our collective understanding of the “end of life” process in order to facilitate a healthier and happier means for saying our goodbyes without forgetting that, until the last moment, we are all still living and participating in this world. It touches on some important ideas, pivoting about the notion that our system, our society, marginalizes and fears death and, more specifically, the process of dying. Yet, death is as much a part of our existence as birth. Continue reading Narratives Matter, Beginning to End→
I have had several conversations lately that had me thinking about the relationship between actual medicine and the types of supportive care or complimentary therapies people I know have tried, which they are convinced play an important role in prevention or recovery. After watching the first installment of the PBS / Ken Burns produced documentary Cancer: The Emperor of all Maladies, I was in a fairly serious mindset on the subject, too. The history of cancer treatment is decidedly complex, with no shortage of conflicted emotions on how science has progressed — especially over the past 60 or so years — to the point where we are today. Coming out of essentially the Dark Ages, where little was known at all about the mechanisms of cancer cells and the prevailing belief was that all cancers were ostensibly the same, we entered a realm of promise and difficult choices that resonates to this day. And it is this difficulty that dominates so much of public perception that also opens the door toward less effective, but easier paths.
The problem is, on their own, those paths do not lead to the promised land. Easier to travel, they may be. But without the difficult choices, often there is nothing to lift the patient toward the promise.
Yet, there is a third component to this equation, hinted at centuries ago when physicians still believed the body’s ills were determined by the four humors and too much black bile was the likely cause of cancer.
