Tag Archives: Reason

Advocacy, Messaging, and Outreach

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As a “Lung Cancer Advocate,” writing for multiple sites is a way to reach and presumably help more people. That is why I sometimes take a break from my blog and contribute to discussion sites like Quora or write for communities like LungCancer.net. I participate on sites like Patients Like Me, Health Unlocked, and Cancer Support Community. I also publish my audio and video blog, The Deep Breath, for subscribers on Patreon (there is a link for the RSS feed for the audio-only episodes). All in, it sometimes seems like I am spread a little thin.

But it is important to reach out in many ways, especially, it seems, when Lung Cancer Awareness Month still seems neglected in the wake of the Breast Cancer Awareness Month juggernaut that is Pink Ribbons and merchandising and organized events at every turn. Not to mention that there are more causes seeking awareness than there are months, and the limited color options for ribbons are often appropriated for multiple causes (sometimes even simultaneously).  Continue reading Advocacy, Messaging, and Outreach →

Dropping the Cancer Bomb

Cancer, Health and Wellness, Reason, , , , , , , , , , , ,

Dropping a bomb or sabotage — what does it feel like when you get the news of someone’s cancer second hand or by accident? That is what I have been pondering this afternoon since offhandedly mentioning my blog address in conversation earlier, without pausing to put its content in context. Since I don’t look like I am sick, a non-subtle reveal that I have lung cancer can be like a slap across the face. It’s a shock. One I deliver, I expect, far more often than I intend to.

I’ve been told on more than one occasion that it should not be my problem, that I should not feel obligated to hold somebody’s hand when I tell them about my “health condition,” and that I cannot be responsible for another person’s reaction to my disease. But I also consider the reality that most people know someone, quite often family or a close friend, who has struggled with a form of cancer. Depending on where you get your statistics the numbers vary slightly, but no matter which source you use the bottom line is that over a third of us develop some form of cancer. That means out of every ten people you know, three or four of them are likely to have cancer at some point in their life. It is no surprise, therefore, that on my street alone I know of seven patients — and I should stress that those are only the ones I know of within less than two blocks, not necessarily the absolute total for the street. Also, I’m not particularly social or friendly, in case that is relevant to knowing what neighbors are up to. In other words, there are probably more of us on this stretch already.  Continue reading Dropping the Cancer Bomb →

Some Thoughts on Death and Dying

Cancer, Fear, Politics, Reason, , , , , , ,

The past few days have been interesting, in the way that might make a person both sad and angry, and hopefully also touch into a compassionate spot. After a lot of attention had been given to the hurricanes that battered our nation last month, highlighting both the devastation of nature and human resilience, it seemed that we were due a period of celebration. Instead, music icon, Tom Petty, died (prematurely reported, retracted, and ultimately, with some finality, reported again). And just before that, on the last night of a big music festival in Las Vegas, a so-called “lone wolf” gunman managed to use a stash of roughly 20 weapons (at least some of which were modified to be more deadly) to kill in the neighborhood of 60 innocent people, wounding hundreds of others. He did this from a hotel room in a very fancy casino across the street, using long-range rifles. It’s enough to get a person ruminating on mortality. As if living with stage 4 lung cancer wasn’t enough.

Before I get too self-indulgent, however, I should put my thoughts into perspective. Death doesn’t bother me so much; I do not hold onto a fear of dying and I cannot recall a time when I did. But I do have a deep and consistent anger about enabled murder, preventable deaths and injuries (both physical and psychological), and the lack of public will to address the underlying issues that allow such things to continue happening. And in that regard, I suppose, I do have a fear of getting shot. In almost 50 years, I’ve been lucky enough to have been directly threatened with a gun only once — but I’ve still been threatened with a gun. It is hard not to think about these things when a mass shooting happens just a few blocks away from where you had been lying poolside about a month earlier. Continue reading Some Thoughts on Death and Dying →

Interview With Radiation Therapist Turned Stage IV Lung Cancer Patient

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I meet a lot of interesting people through my lung cancer support group. Most of them are on some form of chemotherapy. A few have tried immunotherapy. Some targeted drugs have been in the mix, along with surgery and radiation. The one commonality between them is their optimistic perseverance. But it isn’t rooted in blind optimism or faith — the whole point of the group is to share perspectives and experiences, gathering useful knowledge in the process. We all come with our own perspectives that inform our decisions and influence how we share, most of us having begun as (more or less surprised) patients that have evolved into advocates. Once in a while, a patient arrives with multiple perspectives built-in, hardwired to see her situation from both sides of the exam table.

And if I’m really lucky, she lets me interview her for my podcast:

 

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Inside a Chemo Clinic Phamacy

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Where the concoctions are prepared.

Before I concluded my chemotherapy, I sat down with the pharmacist who had mixed my drugs for nearly three years and recorded our conversation for my erstwhile podcast, The Deep Breath. It offered a revealing look inside the process of administering chemo, as well as other drugs used to treat cancer patients.

Meet Evan, the pharmacist. Click his image to hear his insight into the treatment of cancer through pharmacology.

I did not realize that I was one of the longest consistent patients currently receiving treatment at this facility. Although I was preparing to call chemo quits after slightly more than 2.5 years, I knew of at least one patient who had been on the same basic regimen as me for around seven years. But that had been before my time. As I settled in to interview my pharmacist, he revealed that he was not aware of any patient at the clinic who had been receiving chemotherapy as long as I had been since he started the job. I appreciated the special distinction, even though I had mixed feelings about it. Continue reading Inside a Chemo Clinic Phamacy →

Common Sense, Clarity and Wellness Warrior Lies

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As long-time readers know, I take issue with a number of high-profile “wellness warriors” and anti-science advocates who claim to offer “natural,” “holistic,” or simply “alternative” treatments that can cure cancer or prevent it entirely. Chief among these are Chris Wark and Ty Bollinger, two people with absolutely no scientific or medical training and tons of bad advice. They are part of a large network of disreputable and largely discredited hucksters, many of whom get by on their claims by offering just the tiniest shred of truth mixed in with their hyperbole and insidious messages. They thrive in our increasingly anti-intellectual culture, where headlines and sound bytes sway their customers and their “fan base” into believing that there is substance to their messages. This is why, more than ever, it is essential to take a critical approach to all the medical headlines that are presented, and especially those making extraordinary claims.

The well-established and professionally vetted website, Healthline, has a very good primer on the subject of spotting fake medical news. It could hardly be more topical. There is nary a day that goes by when some website or other isn’t making absurd claims about the latest health craze or danger. Whether it is bloating the risks of GMO foods or misrepresenting the cancer risk from eating red or processed meat, there are more sources out there in the ether intent upon cherry picking data or simply removing it from context in order to sell their point than there are serious outlets for the reporting of science news. Part of the problem with this is that science news isn’t usually considered very sexy or commercial, but a bigger problem is that it is generally difficult for most people to fully understand.

And capitalizing on that, we have opportunists like Chris Wark, a self-proclaimed guru on defeating cancer without chemotherapy. Duly note, of course, that Mr. Wark was cured through surgical intervention and, while chemotherapy was recommended as an adjunctive treatment to lower the risk of future metastasis, there was no indication that he had any actual, existing metastases that needed treatment. To put it bluntly, he was one of the lucky colon cancer patients who had it all taken out without any recurrence. This had nothing to do with whether or not he received chemotherapy, and there is no way of knowing how he would have responded to such treatment or whether his “lifestyle” choices have had any bearing whatsoever on his post-surgical health. Continue reading Common Sense, Clarity and Wellness Warrior Lies →

A Conversation About Critical Thinking

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Why is Critical Thinking important?

Arguably, we live in a time when it has become increasingly important to carefully parse data, even, as it turns out, in casual conversation and friendly communication. The rampant spread of misinformation in the Age of Social Media is nothing new. Conspiracy Theorists and intentional hoaxsters have been an ever-more-apparent online presence since the rise of newsgroups. Even in those near-forgotten days of Lost History prior to our every moment getting logged for “posterity” in the cloud, we had plenty of access to active (and more easily identifiable) paper sources of deliberate misdirection ranging in credulity from The Weekly World News to The National Inquirer — publications finding a non-ironic insurgency in recent years as their online brethren like NaturalNews, InfoWars, and WorldNewsDaily have added to the fodder for the less-Luddite paranoid contingent.

For the sake of reason, it is essential for all of us to adhere to certain standards of Critical Thinking. Just for purposes of general, civil communication, we should all want a basic, coherent understanding of the facts of our world. Philosophical differences aside, it should be a simple task to understand the foundations of science and recognize pseudo-scientific rhetoric as what it is; it should be easy enough to discount rigorously anti-intellectual arguments and logical fallacies

Lately, I have written a few posts on critical thinking and promised an interview on the topic. Although I recorded this some weeks back, I have finally delivered on the promise to upload it.

Click here to listen to The Deep Breath podcast.

Logical Fallacies, the Enemy of Critical Thought

Following are a few fun pages that list logical fallacies. They present them differently, so it is worth visiting a few of the sites to get a feel for how they lay them out or categorize them, but generally speaking, they cover a lot of the same ground. Enjoy the journey!

Logical Fallacies Handlist

YourLogicalFallacyIs

Common Fallacies in Reasoning

Master List of Logical Fallacies

Drake’s List of the Most Common Logical Fallacies

Wikipedia List of Logical Fallacies

Fallacies: Alphabetical List

http://www.theskepticsguide.org/resources/logical-fallacies

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Chemo and I Had a Pretty Good Run

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My recent post on dealing with change and adversity was inspired in no small part by a change I am facing in my own life, one rife with uncertainty and heavy with anticipation. The last CT scan I had showed that my primary tumor, the one by which we gauge progression or lack thereof, was still within the technical boundaries of business as usual. That is to say, its lateral dimensions had not changed significantly since the previous scan, and overall had not grown enough over the similar measurements from a year or two years ago to precipitate anxiety. But CT scans are, for lack of a better term, a bit fuzzy. The images are fairly clear, but the data is difficult to measure with absolute precision.

My first CT scan machine from October 12, 2014, and still one of the more peaceful places I know. I have taken about a dozen rides through that hole by now.

Because CT scans are essentially three-dimensional, but are viewed on two-dimensional screens, comparisons between scans are inherently imprecise. The angle of a subject’s body, how inflated the lungs were, the position of the subject within the imagining chamber, all figure into subtle differences between the final scans. On top of that, because the images are basically multitudes of cross-sectional snapshots, a comparison must be made by selecting the closest approximation to the “same” image between scans from different times. I’ve looked at lots of these — in fact, I keep digital copies of all my scans for reference or posterity — and I’ve used the tools to line up and measure my tumor as best I can.

And in two dimensions, at the standard viewing cross-sectional approximation, my mass looks very similar from scan to scan, every three or so months since this process began. My chemotherapy was clearly doing what it was intended to do, which was to prevent progression of the disease. Progression is generally defined in terms of the length of the tumor, but we all know that tumors are bundles of cells that grow and change along more than just one axis.

I was never under any illusion that the chemo would cure me — there is no official cure for Stage 4 Lung Cancer. Any time that the chemotherapy could afford me by maintaining stasis has been considered a luxury and at over two and a half years on this particular regimen, I have been the longest continuous success case that many on my medical team have known. So the next time I see most of them will be a special, bitter-sweet occasion.

Because the time for change has come. Continue reading Chemo and I Had a Pretty Good Run →

Beyond the Shame of Change, Adversity, and Grief

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Nothing is forever, as the saying goes. And it seems true in terms of human experience. Change is inevitable. You can’t please all the people all the time. Time will tell. What doesn’t kill you makes you stronger. But, of course, you can’t judge a book by its cover because the grass is always greener on the other side. Also, that thing about picking your friend’s nose.

I am clearly not above the occasional inspirational bracelet.

Just not that one about everything happening for a reason. I’ll concede that there are certainly arguments for cause and effect — in fact, very much so, which is essential understanding when it comes to actually dealing with the issues that are thrust upon us in spite of our best efforts and desires. To suggest that everything happens for a reason is immensely wrongheaded and, even with the best of intentions, is ultimately unhelpful.

This does raise the issue — when suffering or change of any sort occurs — of how one is to cope if there is no purpose behind the suffering or change. Continue reading Beyond the Shame of Change, Adversity, and Grief →

The Meaning of Normal

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I have been fascinated by the suggestion that life with cancer somehow equates to “a new normal” in my families existence. I don’t know what that is supposed to mean, exactly; isn’t “normal” supposed to be an objective center, a median experience, the fulcrum of an ever-swinging scale? But nowhere does the relative nature of normality present itself so clearly as with the slide into a chronic, managed illness.

Read the full post here.

If this post resonates with you, please consider supporting my work through a monthly subscription to my feed on Patreon (which includes an exclusive podcast), or a one-time donation through PayPal. Follow me on Twitter, Facebook, Tumbler and many other fancy social sites or apps. Please share my posts to groups you are involved with on Reddit or Google+ or anywhere else that you feel it will help or enlighten or inspire another reader. (Sharing buttons are below the post!)

Thank you!