Tag Archives: Fear

Myth of the Wellness Warrior, Part 2: Supplements, Denial and the Birthday Problem

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I’ve heard a lot lately about fears that a conspiracy is being perpetrated by the pharmaceutical industry and the government to keep natural cancer cures (and natural or holistic care in general) away from patients. It makes for a dramatic story with lots of Hollywood appeal, but examining the accusations leads down a more insidious path. To get there and understand the full extent of the problem, we need to step back and look at a range of sub-industries within the healthcare umbrella, what they provide and how they intertwine. We also need to understand some basics about statistics and probability that will clarify what some of the facts surrounding this conspiracy really mean. [And when you are done reading this, please continue on with the next chapter in this ongoing series.]

Supplementing the Truth

To begin with, let’s examine the hugely profitable supplements industry (mentioned in Forbes’ SportsMoney column as one of the fastest growing industries in the world). “Natural health” advocates and self-proclaimed gurus often have their own supplement brands which they sell as part of  treatment plans pushed on their web sites, or they have affiliate arrangements with a brand that they offer as being somehow superior to other brands. The supplement industry has grown from the notion that manufactured (or synthetic) vitamins could be used to supplement areas in the diet where a person was not able to consume adequate quantities to be healthy. In an indirect way, it can be traced back hundreds of years to the discovery that citrus fruit — particularly lemons — could prevent sailors from getting scurvy. It turned out that scurvy was a disease caused by a Vitamin C deficiency. By “supplementing” this vitamin, the disease could be avoided. Continue reading Myth of the Wellness Warrior, Part 2: Supplements, Denial and the Birthday Problem →

Talking About Life While Facing Death

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One of my more popular contributions to the Quora.com web site deals briefly with how we approach loss and watching a loved one die from cancer. This is a subset of one of the most important topics of my blog, the need to redefine the narrative of cancer. Stories that we hear and those we tell ourselves are very important in terms of how we approach and understand the world. For most of history, the narrative of cancer has been relayed in a fairly dreadful manner — and often rightfully so, because the story of the times was perhaps simply accurate. But the time we are living in now requires a reboot of that narrative, one with more optimism and hope and, more importantly than even that, a good, solid dose of actual science. Another thing that needs to be adjusted, I believe, is more of a societal approach to the empathy of death and dying and how that can be embraced as a natural, even welcome, component of life.

I am clearly not above the occasional inspirational bracelet.
I am clearly not above the occasional inspirational bracelet.

While this is a more complex issue than I can adequately address in this post, I am going to include a short answer I wrote on Quora about a year after my own diagnosis with lung cancer — at which time I had just about reached my “statistical” expectation for life expectancy with a Stage 4 diagnosis. You see, according to the abstract numbers you get through pretty much any Internet search on survival rates, Stage 4 lung cancer does not fair very well. If you believe the numbers, you’re just supposed to die. Quickly. So I did some “soul searching,” and came to terms with what dying might mean to me. Then I moved along because, for one thing, I know a little bit about reading statistics and it was clear that they did not apply to me. (My demographic, for one thing, was not properly represented, nor was the collection of treatments that had been introduced in the previous five to ten years, which is about how out of date most survival rate statistics are when you get them.) Besides, even if cancer was going to negatively impact my longevity, I still had a lot of living to do. And the plan remains to live long enough to die of something else. After all, there is no shortage of ways to exit this existence. The real question, ultimately, becomes not how or why we go, but what we do with our time here that matters. Continue reading Talking About Life While Facing Death →

Everyday Tragedy

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I’ll admit that there are some days when I feel like stuff is pretty bad. As with most people, I imagine, it can be easy to focus on how stressed out I am over finances, health issues, car trouble,  marital concerns, whatever it is that is going on with my kid, deadlines on projects I don’t really want to be doing, deadlines on projects I really don’t want to be doing, some bullshit, that other thing, whatever… But before I go moping off into my self-aggrandized pit of misery, something usually stops me. More and more often in recent years, it has been essentially the same thing: the reminder, through everyday tragedies experienced by people I care about, that life is fragile, tenuous and entirely worth not wasting on feeling sorry for myself.

Tragedy teaches us

Drama-icon
As much as these are lessons I would rather not have learned, it is an inescapable fact that every tragic occurrence teaches something. The lesson might seem small, even devastatingly pointless, but that is part of the theme; the overarching message life gives us is that we are all relatively inconsequential, except to each other. Our value is created by our contribution, our loss felt more deeply for a future deprived.

More than that, however, life teaches us that we — any one of us, at any time — can simply be removed from the social equation. That includes everyone we love, everything we hold dear. Our closest friends. Our parents. Our children.

There are lots of practical causes for things that turn tragic. Some of these we can do something about. Better gun regulations, better mental health services, better education. Sometimes we just get lucky and hit the brakes while turning the wheel at precisely the right moment. Continue reading Everyday Tragedy →

The Risks of Critical Thinking

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I almost never reblog another writer’s work, but I think that this one is worth sharing with a wider audience (partly because I don’t have the time to write my own riff on the topic today). I have written many times about the importance of critical thinking, and I believe it is not being well taught in our schools much of the time. It seems to me that too many adults in these here United States are under-practiced in basic critical thinking skills, so it is difficult to merely fault the students or their teachers. This is a problem that should start and end at home, with school being a place to practice and develop an existing skill, rather than create one from scratch.

Anyway, for your reading pleasure, my friend Elena’s post on “The Risks of Critical Thinking…”

 

December 15, 2015 by writingtimes

I recently read an article in which the author, a professor of science, deplored the pitfalls of teaching students critical thinking skills: eventually, the students begin to doubt everything, even the teacher’s knowledge and experiences. When I read the title of the article, my thoughts snapped out of “Mom in her PJs Drinking Coffee” to my alter ego, “Defender of Teaching Our Students Conscious Choices and Critical Thinking.”

I’m working on the name. But this persona is really tall, she wears super cool boots and can run really fast. In her boots, even. Not that she needs to run. She spends a lot of time standing in front of schools and ranting about how we teach our students in this country. Or don’t, as the case may be. She wears sharp fitted business suits and her hair always looks fabulous. Plus, her children are standing beside her in support and awe of her, not telling her “the hamburgers taste funny” or “you forgot to put money on my lunch card” or “by the way, the dog peed on the carpet awhile ago but it’s not my turn to clean it up.”

You see the difference.

The Defender wanted to write a rant-y response to this article on Facebook RIGHT. THEN. She’s rather impetuous. Instead, I advised that we actually read the entire article first, because that would be really funny, if we went and ranted about another author criticizing teaching critical thinking skills when we never actually read what was written.  Get it?

Read the rest of the post on its original page…

Advocacy and Enlightenment on Lung Cancer

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Shine a Light on Lung Cancer — Event Recap

I just returned from seeing the folks in my lung cancer support group, where we were treated to a recap of the Shine a Light event from this past weekend. I got to see my speech all the way through for the first time, projected on a big screen in the conference room where we meet, and I’ll admit that I made myself tear up a bit there. It’s like I was speaking directly to me. And it made me realize how much I could have benefited from an actual stylist, but I suppose that is another story.

Shine a Light on Lung Cancer at Huntington Memorial Hospital
Let’s play “Who’s Doing Chemo?” among these three gentlemen… Here’s a hint, left to right we have: Robbin Cohen, MD, medical director for the thoracic oncology program, Jorge Nieva, MD (my esteemed oncologist), myself (the lung cancer patient)  and Christine Conti, RN, nurse navigator for the Huntington Hospital lung cancer program, who brought my medical team together. If you guessed “the guy with the hair,” you’d be winning big prizes right now. If there were prizes. Sorry, no prizes. But thank you for playing.

There were 147 people in attendance for this lovely event; next year I am hoping that we can inspire something new, like a walk organized through Downtown Los Angeles with 1,000 or more people participating. High hopes, perhaps, for an often stigmatized illness. But this is about changing perception and bringing the narrative into the 21st Century.

In the meantime, please consider supporting this petition for increasing research funding, and please share it with your friends and social networks. Nothing progresses without sharing — it is the only way to truly increase awareness. There needs to be a greater discussion around lung cancer, and around cancer in general, so that people can begin to understand what this condition truly is and how it can be safely and effectively lived with when treated early enough and with proper medical care.

Too many people are still living with a fear-based paradigm about cancer, rooted in outdated treatments and late detection. Hollywood is still making movies about what cancer was like decades ago and the scientific journals are too dense or obtuse for laypeople to easily digest. TV personalities like Dr. Oz are still offering false hopes and pseudoscientific claptrap for easy ratings by promoting dietary cures and other nonsense rather than speaking truth about the rise of medical science. In fact, Dr. Oz and his guest Dr. William Li play fairly fast and loose with the notion that the foods they recommend can actually prevent or treat cancer. The sheer volume of food that would have to be consumed to even come close to the results they imply would be difficult to tolerate at best. Continue reading Advocacy and Enlightenment on Lung Cancer →

The Give and Take of the Support Group

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I met some nice people today. People who I would not normally have crossed paths with in my daily life. They were a happy, optimistic bunch, or seemed so to me, in spite of the circumstances that brought us together for the 90 minutes allotted this morning. Most of the small group knew each other, but were largely strangers to me when I walked into the room. It was my first time attending a cancer support group.

I had no idea what to expect from the meeting. The truth is, I had not been in any particular rush to attend; my impression of such a gathering was based on flimsy Hollywood portrayals, and that fuelled more by onscreen AA meetings than anything else. The coordinating nurse who ran the meeting was also the person responsible for setting me up with my oncologist and taking care of most of the administrative functions revolving around my early care from the point where my tumor was identified until I had begun my chemo drips. And she has been a part of the process since, if not directly, keeping tabs on me and checking in now and again. She had asked me on several occasions if I would attend a support group meeting and I had always put it off, thinking that I was doing fine and so, really, it wasn’t something I really needed to do.

Then she sent me a flier, with a personal note at the top, and I went and put the date in my calendar. And then there I was. Continue reading The Give and Take of the Support Group →

Perspective: One of the Greatest Gifts of a Cancer Diagnosis

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I was skulking around the house last week, ruminating on just how bad I smelled. My wife was getting annoyed with me, insisting that I did not smell any differently; it was a hot, stagnant summer day and I was sweating (I felt) profusely. My chemo treatment was beginning to purge from my system and it seemed to me that as I would walk around a corner or even just turn my head, I would get a wiff of something nasty, putrid, sour. And I couldn’t shake it — that smell was just plain bad.

But it couldn’t be identified, or even located. And I was the only one smelling it.

Then I started to take stock of all my symptoms, which I do now and then as both a way of monitoring my body and keeping a sense of humor about the process. Because it can be pretty gross. Let’s face it, no one likes to think of themselves covered in puss-filled sores, hobbling about on swollen feet and wafting fetid breezes from God knows where throughout the room. Continue reading Perspective: One of the Greatest Gifts of a Cancer Diagnosis →

The Chemo Diaries: More Summer Fun

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Aside from my ever diminishing veins, the infusions during maintenance continue to be easy and relaxing. I guess I am lucky in that way — I know people who have different cocktails that they have various reactions to, from rash to fever to nausea on one end and flat out groggy sleep on the other. During these Alimta cycles, I am in and out fairly quickly and my biggest complaint is not having enough time here with the heated massage chair and my morning coffee to, uh, get any real work done…

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finally time for my cup of morning joe

 

Two infusions ago this chemo drug appeared to really mess with my digestive system, but it cleared up just in time for my scheduled CT scan and did not recur with the following round. The assumption now is that I simply caught a stomach bug that lingered for a couple weeks. The whole repressed immunity thing has been on my mind lately, and not just because what probably should have been a 24 hour virus took me 14 times longer to purge from my system.

Although the ensuing three weeks were relatively symptom-free (steroids make me irritable, mess up my sleep for three or four days and make me an emotional raw nerve; the chemotherapy wreaks havoc with my joyous time travel into the land of teenage acne, but even these things seemed to lessen somewhat), the issue of immunity and, more specifically herd immunity, was thrust back front and center when we brought a new kitten home from the pound. Continue reading The Chemo Diaries: More Summer Fun →

The Myth of the Wellness Warrior

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Please note, this is Part One of a series. Click here to jump to Part Two or follow the link at the end of this post. Part Two contains some very important information that greatly expands upon some of what is raised here.

Somehow I managed to miss the name Candice-Marie Fox when I was going through earlier research on foods that are claimed to cure cancer, of which her pineapple diet ranks as one of the more ludicrous. Through the grapevine, I learned of this diet yesterday and immediately I wanted to find out if there was anything plausible about it. Certainly, pineapple is healthy to eat and it is often used for digestive issues due to its enzymatic activity, so I wanted to give it the benefit of the doubt. Of course, I did not expect that there would be an actual cure in there, but maybe I could ascertain some actual benefits to the diet that transcended my initial skepticism. I was excited about this possibility; less so about discovering one more person preparing to cash in on a faux cure.

Pineapple is good for you.

A quick Google search brought up hundreds of articles online about how this woman, Candice-Marie Fox, a former model (always in the lead of the story), beat “Stage 3” or “Stage 4” (depending on the article) thyroid cancer by “ditching her husband” and eating a diet dominated by pineapple and other fruits. As is often the case in this sort of story, even as it is translated into multiple languages, the text is almost identical from web site to web site. And most of those articles can be traced back to a source in that British rag called the Daily Mail — not exactly a solid, investigative news source.

A few other “news” outlets picked the story up. It makes great click bait, after all. But fascinatingly, these actual news stories manage to get a whole bunch of facts wrong. Which is not surprising, as the former model herself seems to trip over her own facts many times, even in interviews on other web sites after her celebrity began to grow.

Continue reading The Myth of the Wellness Warrior →

Clip Show: Cancer Edition 2

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Welcome to another Clip Show! Here are some things that were lingering in open tabs for a while that I intended to use or share, but haven’t found a proper post within which to do so. I encourage you to click the links and explore, watch the videos here and enjoy. Hopefully there is something for everyone.

I don’t normally reference Fox News as a source of reason, but here is a great interview with actress Maura Tierney discussing her experience with chemotherapy:

http://www.foxnews.com/health/2012/09/26/er-star-maura-tierney-debunks-chemo-myths-after-breast-cancer/

Continue reading Clip Show: Cancer Edition 2 →