Tag Archives: communication

The Breathe Free Walk to End Lung Cancer

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I am speaking at the First Annual Breathe Free Walk to End Lung Cancer sponsored by the American Lung Association and the American Cancer Society. The walk is designed to raise awareness of Lung Cancer and funding for research. Following is a transcript of my brief comments to take place before the walk.

November 6, 2016 : Opening Remarks for the Breathe Free Walk to End Lung Cancer, Fort Mill, South Carolina

I’m pretty darn happy to be here. Two years ago today, I was diagnosed with inoperable metastatic adenocarcinoma, more commonly referred to under the umbrella term of Stage IV Lung Cancer. As a relatively young non-smoker who ate healthy food and led an active lifestyle, took my vitamins and got plenty of sleep, you might imagine that this diagnosis was a bit of a surprise. But if you’ve followed my story on my blog, as I know some of you have, then you also know that when I started this journey I did so with a substantial amount of faith. That same faith is shared by the organizations sponsoring this event, and by proxy, it is shared by you who have come here today. And that is faith in modern medical science.

We all have faith in lots of things. And there are different types of faith, to be certain. Spiritual faith often plays a key role in the emotional health of patients, perhaps making it possible for them to endure difficult treatments or to remind them that there is something greater of which they are an important part. Faith in our friends and family can be essential as we worry about things we may not be able to take care of on our own, even for those of us who have a hard time leaning on others. These expressions of faith, they allow us to trust in some kind of a safety net that will be there in the event that we are pushed or slip or even jump headlong. And undergoing treatment can feel any of those ways. Continue reading The Breathe Free Walk to End Lung Cancer →

Raising Awareness About Lung Cancer

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After the interview with Olivia of CN2 News in South Carolina.
After the interview with Olivia of CN2 News in South Carolina.

I was fortunate enough this morning to have reasonably good hair and a beautiful background for a quickly set-up interview in support of this weekend’s Breathe Free Walk to End Lung Cancer. The walk is taking place this Sunday afternoon, the “first annual” fundraising event co-sponsored by the American Lung Association and the American Cancer Society.

If you check back on Sunday, I’ll be posting the speech that will lead off the walk. There is a chance that the local news will be back to cover it, and maybe they will end up airing a bit more of the interview we did today. Below is the one-minute clip that aired during the newscast.

https://vimeo.com/190312571

November is Lung Cancer Awareness Month.

I look forward to leading off the First Annual Breathe Free Walk To End Lung Cancer in Fort Mill, South Carolina. It is exciting to be a part of a new awareness campaign, and I’m especially proud that my mother has organized this walk. She brought the concept to the co-sponsors earlier this year and worked with them, as well as local organizations to get the walk set up in time for Lung Cancer Awareness Month.

Breathe Free is a fundraiser dedicated to lung cancer research
Join the Breathe Free Walk to End Lung Cancer

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WHO on EMF and EHS – Will Wi-Fi Cause Cancer?

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In this modern world, there are plenty of reasons to be cautious. Digital devices almost seem to control our lives. They take up our time, luring us into the virtual world for entertainment, allowing us to be more productive by keeping us linked to our work 24/7, lulling us into a world of social networking that never requires us to physically interact with other humans. It is no wonder that authors of speculative fiction depict alternative worlds where we are literally plugged in.

In offices and homes across the developed world, it is more likely than not that there will be active Wi-Fi or Bluetooth connections running all day long, often from multiple devices. In the past twenty years, as wireless connections have become more prevalent, concerns have been increasingly raised about their safety. The World Health Organization (WHO) took notice in the late 90s and began looking at all the evidence that was piling up from studies in many countries. Key to this awareness were the growing trend of Electromagnetic Hyper Sensitivity (EHS) and the concern that Electromagnetic Frequencies (EMF) could cause cancer.

Continue reading WHO on EMF and EHS – Will Wi-Fi Cause Cancer? →

The End of Life and How to Die

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I was going to write about working without wearing any pants, and how pantsless careers are sort of ideal, but instead I am going to offer some thoughts on death and dying.

Most of my mornings begin like this: the low-impact sport of serving up espresso drinks at my daughter’s school followed by a cool down period of errands on the way home. Sometimes, since this is Los Angeles and there is always a bit of traffic to contend with, I have time for a phone conversation or to catch up on my quota of NPR. The ride home also gives me time to ruminate on important issues and subjects for my blog. Sometimes a conversation sparks a new thought process, twists the direction I had planned on going or otherwise derails what would have been a perfectly good fluff piece. By way of example, I recently conversed with my mother about my father’s final days, thus running the train of intention for this post completely off the rails. Continue reading The End of Life and How to Die →

Support My Site in September and get My Book Free!

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Staring at my budget with blurred eyes and a brain addled by a host of fun chemicals, I have to pinch myself and remind myself there are reasons that I chose the long game; there are reasons I passed over GoFundMe or GiveForward or any of the other single-goal fundraising websites my friends have used wisely to bridge specific financial gaps. I’ve seen those sites work super effectively, raising $3,000 or more in less than a week while targeting figures high enough to cover a host of potential costs ahead. For those friends, who would be “out of the woods” in a few months or so, where all their resources will be expended in a concentrated time, I think the outreach and the community reciprocity is amazing and a great testament to compassion within our social groups. But I’m not hard-wired that way, and my condition is not so neatly tied up in a closed time-frame.

Longer stretch, earning smaller frequent support goals

img_20151130_120725At this point, though it could change, I am on this merry-go-round every three weeks until I die — preferably quite a few years from now. And while I am still riding my chosen horse (a big, jet-black unicorn with a dangerously sharp silver horn, if you must know), I have a lot that I want to accomplish. I can’t manage a job for more than an hour or two most mornings, so I haven’t been traditionally employed for over two years. And yet, I have so much work to do! Like my book on living well with advanced cancer, getting on with life in spite of new limitations and finding the very best of ourselves along theway. Continue reading Support My Site in September and get My Book Free! →

The High (Financial) Cost of Cancer and Why I Am Not Setting Up A GoFundMe Page

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When I was diagnosed with metastatic, inoperable Stage 4 Lung Cancer, it wasn’t long before people were suggesting that I set up a GoFundMe page or use a similar service like YouCaring that would allow friends, family and even total strangers to donate money that would offset my soon to be staggering expenses. My first thought was, “wow, someone else can pay my bills! Score!” I knew about these sites — I had even donated to a few families through them, just like I had supported projects on Kickstarter and IndieGoGo, et. al. — but it had never occurred to me that I might one day be in a position where I would need to set one up. After all, we have good insurance, my wife has a steady job and I should still be able to work at least part time — that is what had run through my head — so this was a storm I expected to weather.

At first, things looked promising. Thanks to the Affordable Care Act, our family’s insurance costs actually came down. We were no longer subsidizing larger families (yes, I understand that families with more children may have seen an increase in premiums because many old policies used to have “family” rates that did not count the number of insured) and we also now had two “safety nets” built into our coverage: a potentially manageable annual cap on medical spending and the knowledge that I could not be dropped or denied coverage because of my condition. Had I been diagnosed a couple of years earlier, this would have been a very different story and we would, with some level of certainty, have lost our home by now or I would be getting treated through some other means entirely, maybe even be dead, or some combination of those options. Continue reading The High (Financial) Cost of Cancer and Why I Am Not Setting Up A GoFundMe Page →

Meant To Be

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On a recent morning commute, I was stuck behind a car that I coveted. It was only for a moment before traffic split off and I chugged ahead in my aging vehicle, but it was enough time for my brain to process this thought: “well, if I was meant to have a car like that…” If only it was meant to be. I caught myself, teetering on the precipice of that trap, and yanked myself back before slipping all the way over the edge.

If only it was meant to be.

The notion that anything in our lives was meant to be is a dangerous concept. People use it to soothe their despair, to give meaning to tragedy or otherwise cope in circumstances that they feel powerless over. But it is a notion that suggests that we should also give up, give in or otherwise simply accept that truly shitty things are meant for us, while other people are meant for luxury or power or even just a simple happiness of some sort that is uniquely theirs. It suggests that if we do not have that good stuff, we do not deserve it, but that whatever crap we are coated in is truly, divinely ours. Continue reading Meant To Be →

Happiness

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It’s after Labor Day in the US, where virtually every child of age is back in school, starting a new grade and most working adults just enjoyed an extended weekend. No doubt there were hundreds of thousands of barbecues burning across the nation, millions of beers consumed, parades, parties and many people striving to eek out a few extra hours of morning sleep while luxuriating in the rare Monday off. But by Tuesday morning, Wednesday at the latest, almost every American family was back to the grind.

When we talk about the business of living, about engaging in life, the emphasis is on participation. The act of being. But what is the point of being present if we are not able to grapple with the simple element of happiness? After all, as dire as life might seem, happiness is the one thing that can truly give it purpose.

The Happiness Ride

Continue reading Happiness →

On Being a Jack-Ass and Accepting that You Are Loved

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When we are going through difficult times, it is easy to get lost in the mess of it all. It’s easy to get depressed, to surround ourselves with thoughts of doom, to hide in the shadows. What is not so easy is getting our weary selves out into the light, to wear the smile that reminds us of the joy lurking around unexpected corners, and to keep focusing on the true business of living that we really ought to be engaged in at every available moment.

Every now and again, we need to be reminded about all of this, each of us. And it is great when we stumble across a voice that speaks to us in a way that cuts through the BS. I am going to share a piece of writing that, I think, speaks a bit of clear truth that is worth paying attention to.

The following was written by Eugene Belitsky, posting to his Facebook feed. I “met” Eugene through Facebook, I suppose, after I read some post of his (or maybe he read one of mine). It’s only been about a month, but I’m claiming chemo brain for not remembering; all I can say is that he inspired me with the way he was dealing with his recent cancer diagnosis, refusing to let that diagnosis deprive him of his humor and his joy. And I saw some similarities in our lives: we both have a young child, we both dislike snake oil salesmen and I think we have a similar sense of humor. So I have followed Eugene’s story and then about three weeks into our deepening relationship, he wrote this wizz-dinger. I immediately told him I wanted to post it here. Fortunately for you, he graciously replied that, indeed, I could. Eugene Gives Permission!

Eugene Belitsky

August 25, 2016 at 6:58pm ·

Continue reading On Being a Jack-Ass and Accepting that You Are Loved →

Clearing the Roof

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The past two weeks wore on me; at times, I felt like I could drown in the pool of stress I had been slowly sweating out of me, a thick quagmire created of my own internal angst that seemed to engulf me from all sides. I’ve drained that pool in the last couple of days after trying a little exercise I like to call Clearing the Roof. Because I realized that stress is a top-down issue, it was going to have to be dealt with right up there, on the roof, where all that clutter and debris had been sitting, decomposing into mucky, thick, unmanageable gunk. Some of it was fresh, identifiable, easily swept away. Some of it had been there for years and was entirely unrecognizable. A whole lot of it, it turned out, was just settled pollution, junk particles that had come to rest because nothing had ever washed them away. It had been a much longer time than I thought since I had done this kind of personal maintenance.

Good thing I had a tall ladder.

But first, some backstory: For years I have talked about the importance of letting go of stress. I have let it eat at me in the past while I absorbed it from other people like an emotional sponge and the effect is that it triggers very strange migraine effects that mess with the speech center in my brain, causes a blind spot that travels across my field of vision and has, on one particular occasion, caused a trans ischemic event that, for those unfamiliar with the term, is kind of like a small stroke during which I lost control of my body, hallucinated that the table full of Happy Hour beer and appetizers was bouncing around, tossing things at me, and then I could not make sentences that anyone (else) could understand for about twenty minutes while my left hand tried repeatedly to climb up my chest. Continue reading Clearing the Roof →