Tag Archives: body

My Frenemy, Dexamethasone

When initially discussing chemotherapy treatments, most people begin with the thought that it is the chemo drugs themselves, those infamously toxic concoctions, that the patient would complain about most, or fear, or suffer from. And chemo does suck, what with the potential for nausea and fatigue and that notorious chemo brain. But do you know what really sucks, dear Reader? Steroids.

I recognize the importance of the Dexamethasone pills I take for three days at the start of each infusion cycle. And I appreciate that I am not taking Prednisone, which some of my friends have been saddled with for lengthy periods of time and which I had seen turn my father’s final years into a much less pleasant time than they should have been. I owe a debt to Prednisone, without which I would not have gotten ill enough to eventually lead to my cancer diagnosis, but I will never take it again. Dexamethasone, on the other hand, I can deal with. I don’t like it, but I understand the need to make my peace with the sleepless nights and mild dizzy spells and increased irritability, the hoarseness and seemingly endless peeing. Continue reading My Frenemy, Dexamethasone

The Cannabis Cancer Cure Explained

Let’s put the Cannabis Cancer Cure into some perspective.

If we face the facts, anyone purveying hemp oil or cannabis as a cancer cure is either willfully ignorant of the facts or is delusional about its proven effects. While certain cannabinoids or other chemicals found in the cannabis certainly show promise for potential cancer treatments, thus far the only valid studies have occurred in Petri dishes or grafted animal tumors. And there is one insidious fact left out of the claims proliferating across the Inter Webs.

Cannabis can make some cancers worse.

That’s right, the same chemical components that appear to kill or slow the progression of some cancer cells have also been shown to speed the growth of other cancer cells. There is a matter of dosing, too: some doses help reduce tumors while other doses will actually cause progression. And this is still in a highly controlled lab dish setting. Getting those doses correct through the filter of individual human metabolism could be a disaster, if it even works at all. Continue reading The Cannabis Cancer Cure Explained

The Chemo Diaries: 10 Months

Let me just start by saying I feel great. I just had another CT scan about a week ago and it is showing clearer edges to the main tumor, some puckering in the middle and overall indicates good progress. Yesterday I had my infusion of Alimta and for a nice change of pace I have cut my steroid use in half — which so far is going quite well for me. I am not a fan of steroids and this was one of my top objectives. The result has been a clearer head so far, a bit more sleep and less swelling of my feet, which translates to a nice win in my playbook. All in all, I am quite pleased with my week.

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The only downsides are things that probably won’t be issues for a while, possibly a long while. One of the effects of infusions is that slowly but surely veins collapse. I always had marvelous veins for drawing blood but they have taken a heap of abuse over the past year and a half. The labs approved by my HMO tend to use the biggest needles possible for the fastest draw and while that never bothered me before, the chemo had made it so that I bruised easily and had to rotate veins every few weeks just to avoid issues with leaking. It wasn’t until about eight months in to my treatment that a nurse in the infusion clinic asked me why I didn’t just request butterfly needles… The veins are much less prone to bruising now. Who knew?

Still, the veins are a bit of an issue. I still have plenty to experiment with, but we had to move from the arm down to the hand for this last round. My hand veins, possibly due to my normally low blood pressure, stay fairly plump most of the time, making them good targets. But it got the nurse talking to me about putting in a port one day, just to make things easier. Such a port would be under the skin just over my heart, kind of a permanent plastic plug right into my largest vein. Supposedly that would be good for a few years of constant use. Still, it isn’t something I am in a rush to do.

But a few years or more is certainly what I am looking at right now. While no one will put a timeline on anything regarding treatment, my oncologist did say that he expected I would remain on this current regimen for a fairly long time. That is pretty good news in its own special way. Of course, the main reason for switching off it would be the commercial availability of PD1 therapies. We are eager to try those, but not so eager to qualify for clinical trials, which would require progression of the cancer after the failure of my current chemo. For now, that wait is a good one.

Perspective: One of the Greatest Gifts of a Cancer Diagnosis

I was skulking around the house last week, ruminating on just how bad I smelled. My wife was getting annoyed with me, insisting that I did not smell any differently; it was a hot, stagnant summer day and I was sweating (I felt) profusely. My chemo treatment was beginning to purge from my system and it seemed to me that as I would walk around a corner or even just turn my head, I would get a wiff of something nasty, putrid, sour. And I couldn’t shake it — that smell was just plain bad.

But it couldn’t be identified, or even located. And I was the only one smelling it.

Then I started to take stock of all my symptoms, which I do now and then as both a way of monitoring my body and keeping a sense of humor about the process. Because it can be pretty gross. Let’s face it, no one likes to think of themselves covered in puss-filled sores, hobbling about on swollen feet and wafting fetid breezes from God knows where throughout the room. Continue reading Perspective: One of the Greatest Gifts of a Cancer Diagnosis

Let’s Talk Nutrition!

Doing research on Cancer, you cannot help but stumble across about a million web sites (not to mention books, those old things) ready to inform about all the ways that food and supplements can either prevent or cure the myriad of cancers out there. So I thought I would do everyone a solid and break down the Truth About Nutrition and Cancer right here. I’m not a doctor, nor a nutritionist, but I am a human being who eats, takes his vitamins AND has cancer! Kind of makes me an expert, just don’t look at this as medical advice. (The info here is good for people without cancer, too, because everyone wants to be healthy!)

About the time that a patient receives a diagnosis of CanCeR, or any other crazy disease/condition/illness/mutation that sets the mind into panic mode, someone is going to be hot after a diet to improve things or search out a cause in the previous diet for where things went terribly wrong, or otherwise look to Nutrition for answers. And, just as inevitably as Nutrition will be sought out for those answers, the InterWebs will provide volumes about why whatever the patient had been eating was the cause of his or her maladies, or perhaps what the patient had not been eating, but whichever the case is there will most certainly be a solution/cure for whatever ails said patient in the form of an ingestible, potentially (or at least allegedly) natural substance. And, by gum, this is in spite of the fact that Big Pharma and the Medical Industrial Complex have conspired to keep the valuable information a secret (which is why it is available on thousands of non-academic, ready to sell you something web pages).

And this is when I point out something obvious, which many individuals fail entirely to pay attention to while distracted by the conspiracy theories being thrown at them: even when the information is being “given away for free,” the site you are visiting is almost certainly selling something. Continue reading Let’s Talk Nutrition!

Vanity

I was reading a friend’s blog post a while back, a personal rant she shot off about tolerance (especially among the particular Christian community of which she considers herself a part) in response to Bruce Jenner’s transition to Caitlyn. I had not realized (at that time) that this was a big deal, or even anything particularly new to discuss, but then I have been living in Los Angeles for about 30 years and this sort of thing is long past novel for me. I know that there are plenty of bigots and idiots in Southern California, but I’ve been fortunate enough to surround myself with, if not always like-minded, at least open-minded individuals for most of my time here. I am also fairly confident that even my oldest friends from rural Illinois who remain entrenched in “Middle America” are soundly rooted in kindness and tolerance. In my well-lived-in fantasy world, it often seems that most narrow-minded people exist strictly as online trolls, waiting to lob their tirades at rational science or reasonably centrist political viewpoints. Then, every now and again, I wake up and venture outside.

For a long time, I’ve been repeating my belief that much of what is wrong with our particular society is rooted in a lack of Critical Thinking Skills. And I believe that tolerance, in general, is indicative of that same problem. If we, as a culture, were to exercise better critical thinking, then bigotry of all types should readily dissipate. After all, bigotry stems from a certain dogmatic thought process which is destroyed by self-examination and a broader understanding of how things actually work and fit together. Therefore, any thoughtful group of people ought to find that their differences make them stronger and unite them better, unless those differences are Continue reading Vanity

Ignoring the Plumbing: Never a Good Plan

Ignoring the plumbing is one of those things that always seems to lead to more problems (and expenses) down the road. Good maintenance is the best practice for a cost-effective and hopefully long life of the system. This is true, not just for our own bodies, but also quite literally when it comes to household plumbing.

wpid-20150108_144118.jpgNot long after I began my chemotherapy, I realized that I had been putting off some of my own maintenance for far too long. In this case, it was a wobbly toilet in the main bathroom, where one of the bolts that used to hold it securely in position against the floor had rusted away and, not long after, the seal on the caulk had come loose. Realization struck that it was only a matter of time until something would go terribly wrong, and I imagined all sorts of disasters I did not want to deal with following an infusion (or pretty much any other time, ever).

I had looked into toilet repair on YouTube. Since that is how I solve most of my plumbing issues, I watched a five-minute video on how to install a wax ring and set a toilet properly. Everything was ready, except that my kit from Home Depot was missing the actual wax ring it was supposed to include with all the other bits of hardware. Fortunately, I noticed that before taking the toilet off the floor. Continue reading Ignoring the Plumbing: Never a Good Plan

Clip Show: Cancer Edition 2

Welcome to another Clip Show! Here are some things that were lingering in open tabs for a while that I intended to use or share, but haven’t found a proper post within which to do so. I encourage you to click the links and explore, watch the videos here and enjoy. Hopefully there is something for everyone.

I don’t normally reference Fox News as a source of reason, but here is a great interview with actress Maura Tierney discussing her experience with chemotherapy:

http://www.foxnews.com/health/2012/09/26/er-star-maura-tierney-debunks-chemo-myths-after-breast-cancer/

Continue reading Clip Show: Cancer Edition 2

Scanning the Options

Today I had the pleasure of going in for a CT scan, which I mean literally, as in I enjoy the experience. It is a brief scan, takes less than fifteen minutes in the actual room, but for some reason I always find it quite relaxing. The parts leading up to the scan aren’t quite as comfortable. Like choking down the solution that will make me light up from the inside…

Drinking a barium solution
Getting Radioactive

Drinking barium sulfate has become somewhat less disgusting since they introduced the mochaccino flavor, it’s true. One of the ladies in reception noticed my second bottle of the morning during my check-in and mentioned that she heard it was “pretty good.” I told her that “more palatable” was a better description, but it is admitedly a huge leap over the nasty flavors offered just a few months ago. Just one additional way in which science is continuing to earn that motto, “better living through chemistry.”

And the fasting; I hate the fasting. Not that I can really complain about four hours between 6:30 and 10:30 in the morning — since these are my usual hours between breakfast and my late-morning snack, I got off easy today. My scans are usually a bit earlier and I can’t sneak a meal in, but today I got lucky.  That’s why, I suppose, I was in an especially good mood upon arrival. Continue reading Scanning the Options

Why I Kept My Cancer Private

In this age of social media, some people might question why I kept quiet about my cancer treatment for as long as I did. There were some very simple reasons for me — in spite of the fact that I was writing a blog about it the whole time. (If you are learning about my experience for the first time, that link is a good place to start reading after you are done here.) Essentially, however, I wanted to keep my personal life separate from what I felt might otherwise define me in the eyes of others. This was a short-term issue, I realized, because at some point the nature of living with an inoperable cancer is that it does define much of a patient’s life, regardless of how much one might prefer otherwise. So I decided to try the slow roll out of information and, to be quite honest, it has served me well (and I also think it has been good for many of the people in my life, too).

When I received my initial diagnosis, there were certain people, mainly family members, who already knew that I had some health issues that were being investigated. In addition to my immediate family, there were also my employers and maybe one or two other people who had to be in the loop, and I knew I would tell these people right away when I had all the information.

As part of my research, before I had any solid diagnosis, I had already gone through pretty much every possible scenario in my head and followed up online to gather information on what any potential diagnosis would mean. Along the way, I also discovered that
Continue reading Why I Kept My Cancer Private