Monthly Archives: December 2017

A Christmas Story

Fear, Reason, , ,

Christmas morning, the family was gathered in the living room making quick work of the presents under the tree. French toast was going into second servings and mine was fresh in the pan, filling my mouth with anticipation. Then my wife noticed the old woman on the sidewalk outside our window.

She had been pushing a shopping cart up the hill we live on. At first, it was hard to ascertain what she was up to; the cart was empty, she seemed to be well put together, her head was wrapped in a clean scarf and she carried a purse that looked barely used. But she was clearly struggling with the incline. Still in my pajamas, I slipped on a pair of moccasins and stepped out to see how — and what — she was doing. Continue reading A Christmas Story →

Critical Thinking and Cancer Headlines

Cancer, Health and Wellness, , , , , , , , ,

I have a predilection for skepticism, especially with regard to hyperbolic medical claims about cancer treatment. Since my diagnosis, I have received many suggestions for things to try and I have been pointed to countless articles about amazing new treatments (and plenty of old ones). Each time, there is a flutter of hope, and I want very badly to see or hear a new piece of information that is going to change the cancer treatment paradigm forever. I think that most patients and caregivers feel that way. Yet, the vast majority of information on “new” or “revolutionary” treatments being passed around via the Internet seems to fall somewhere between misrepresentation and outright fabrication.

Over the past months, I have written a number of short articles on this subject for LungCancer.net — here are links to a few of them:

https://lungcancer.net/living/sifting-c-word-headlines/?utm_source=notifications

https://lungcancer.net/living/fighting-misinformation-fake-news/

https://lungcancer.net/living/health-claims-water-internet/

As longtime readers know, I try to encourage critical thinking and hope to present a good example of that approach to information on cancer treatment options. If you haven’t already, I encourage you to read and share my series of Wellness Warrior posts.  (You can type the phrase in the search box for easy access.)

It takes a concerted effort, sometimes, to cut through the quagmire of nonsense out there. But if we all make that effort, together, to read beyond headlines before reacting and to vet our sources before we share, it will help to reshape the whole narrative around cancer as we know it.

 

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Thank you!

New Scans, New Consultations, New Opportunities

Cancer, Health and Wellness, , , ,

If you are anxious to get an update on my Gilotrif / afatinib treatment, you can listen to me talk about it for approximately ten minutes on my podcast, but this is a fairly busy day for me and I’ve got something far more interesting started… It isn’t every day that a person is asked to participate in a research project that could have direct ramifications for the future of cancer care across the board, much less my family or my own body.

Research Matters

Because I get my treatment through a major research institution, of which my oncologist is a key player, I’m fortunate to be considered for (or at least kept up to date on) new trials and the latest in treatment options. But today, as my session with my oncologist was concluding, he brought in a representative of a research project to ask if I was willing to participate in their study. The immediate benefit for me is that I will get a complete genomic sequencing done on my tumor. That is pretty impressive.

Sharing Data Matters

The ORIEN Total Cancer Care Protocol requires relatively low patient commitment — they have access to my existing tissue samples, which hopefully will afford enough material for them to work with, and in less than five minutes I was in and out of a quick blood draw. Now I get to sit back and see if they find anything interesting. ORIEN stands for The Oncology Research Information Exchange Network. It is all about data sharing and matching patients to precision medicine for treatment. Of course, there is no knowing whether it will turn up anything new or unique for me to try in the near future. I am looking at this more as an opportunity to be a part of something greater, that will positively affect future generations.

The research part of this study, technically under the umbrella of clinical trials, is very ambitious. It isn’t expected to reach completion until after 2036, however; I’m hoping that I’ll be around to read about their conclusions.

 

 

If this post resonates with you, please consider supporting my work through a monthly subscription to my feed on Patreon, or a one-time donation through PayPal. Follow me on Twitter, Facebook, Tumbler and many other fancy social sites or apps. Please share my posts to groups you are involved with on Reddit or Google+ or anywhere else that you feel it will help or enlighten or inspire another reader. (Sharing buttons are below the post!)

Thank you!